Since my child was diagnosed, a lot of improvements have been made. He was at CAMC Memorial in Charleston where they diagnosed him as a "eurpy burper" which is not a real diagnoses. At Cleveland Clinic he was diagnosed as microencephlic (his head was 1/4 inch than the "normal" size). Actually, he became CP because these Doctors did not know what was wrong. When he was 20 years old, we found out that the valve in his stomach did not close after he swallowed his food and let it come back up.

My daughter, Abbie, has Beckwith-Wiedemann Syndrome. It's pretty rare (1:15,000 births) so hardly anyone in my area has ever heard of it. While we could have gone to our local hospital (CAMC Women's & Children's), we have chosen to stick with Cincinnati Children's Hospital. We have been VERY pleased with her treatment there.

When I was pregnant, my perinatologist (Dr. David Chaffin) referred me to the Fetal Care Center at Cincinnati Children's. These doctors were familiar with her before she was even born. I stayed in Cincy a month before she was born and for the 25 days she was in the Regional Center for Neonatal Intensive Care (RCNIC). Her doctors have been fabulous and I would recommend them to anyone.

Genetics - Dr. Hopkin
ENT - Dr. Shott
Orthopaedics - Dr. Crawford
Surgery - Dr. Garcia
Fetal Care Center - Dr. Crombleholme