Comments

Sandi Schmucker

Sun, 11 Oct 2009 17:39:37

Holidays are the hardest when you have a child that can't play with toys the way other children can. What do you buy them. Most adapted toys are way too expensive for the average family. Family & friends don't buy the child anything because "they wouldn't know the difference anyway." They buy for the other children in the family as if it was the greatest thing they ever did. I saw the hurt on my child's face but no one else seemed to notice. As often as I would suggest they all put their money together and buy him an adapted toy they never did. That tells me how much they cared about my special boy. He is an ^angel^ now and I have decided not to invite my family and friends this year for the holidays. My angels adaptive toys are going to other special children this year. This will be his gift to them.

 

Evelyn Carvalho

Sat, 31 Oct 2009 22:00:51

That is one of the saddest stories I have ever heard. My daughter has gone through 35 birthdays so far and if anyone ever said, she wouldn't know the difference anyway, they wouldn't come back to my house. First of all she for sure would know the difference and second toys are not the only gift to give.
I started collections for her years ago and you could do the same. She wears a pin every day and gets many for gift. She loves music (Elvis) so anything Elvis makes a great gift. Clothes, DVD's, I don't know how old your son is but there are DVD's for any age. Start a train, car, Toy Story, Sesame Street or any kind of collection for him and people will have something to go on. Don't leave it up to others, make sure your son is not left out. Leave the adapted toys for you to buy for him. It doesn't sound like you have the nicest "friends" or family if they can leave out your special angel.
I usually don't write on these sites but had to push YOU to make things change and not allow them to overlook you boy.
Good Luck and have great holiday's.

 

Evelyn

Sun, 01 Nov 2009 13:17:05

Sandi please forgive me I just read again what you wrote and now know what you meant about your son being a angel.
I am so sorry for the loss of your boy and the fact that your family never got to know how special he really was.
The holidays will be hard enough without holding onto bad feelings. You do what is in your heart and what makes you feel right at the time.
Again, please forgive me for being so insensitive to your letter. Maybe someone else reading it will start collections to make it easier for outsiders to give gifts to our special children. My daughter wouldn't care if she never got another thing from anyone. It is having friends and family together that matter in the end. As long as they are caring,loving people and it doesn't sound like your were.
My prayers and thoughts are with you.

 

Tina

Tue, 29 Dec 2009 15:07:39

Kindergarten Christmas

My son's class was learning about the different holidays celebrated this time of year. They made a little booklet, each page talking about Christmas, Hanukkah, Kwanzaa, and some of the items associated with each holiday. On the last page, the page was blank and at the bottom said, "I celebrate _____." The child across from my son wrote, "I celebrate Jaden," and drew a picture of him in his chair. I almost lost it when I saw it.

 

Connie Martins

Wed, 30 Dec 2009 08:11:00

Birthdays and Christmas are cherished by our family! My daughter who is diagnosed with CP, s non verbal and non mobile.
Yet we always make the best of it! For her birthday we book kids play rooms and climb with her, it's been getting a little harder now..so this year we went bowling and she loved bowling (hand over hand.

She loves opening her gifts at christmas and birthdays...as for the gifts the family usually buys her clothes...two of her aunts are always trying to find toys that will engage Sabrina! She also gets lots of dvd's and books...as she loves them!

 

carol

Wed, 17 Feb 2010 17:01:03

Holidays are tough and birthdays too. I usually invite family only to my sons Bday. I make up for smaller crowd with amazing decorations!! tons of balloons streamers, and bright colors. I use a different recorded birthday song to accompany the family. As for gifts I provide most of those because I know what works best. Big brother helps with candles and unwrapping gifts.
Holidays I keep a list things like cds dvds even pillows or small blankets. I keep them stashed around the house and car they help with everything from cleanning up a spill to comforting and positioning in different places.

 

maureen

Wed, 21 Apr 2010 10:25:23

The thing is that wenever we travel as you may know we have to pay for the airplane seat for our children even though they don't use it, since they can't sit on it being too big for them, without a pommel, no sde supports and so on. so their seat is vacant but still paid!! and we end up with them on our lap for over 3 hrs back and forth. nwmy question is ... See morewhat happens if i'm sick? where is he going to sit? plus what happens when he's older....he sits on me because he's still youg and small! A mother called our airline to ask them what happens if somone is in a wheelchair, and they told me that in that case th person is lifted out of his w/chair and put on the airplane seat and then back in his w/chair when on land obviously!! when I told them that my son (And I'm sure he's not unique) needs a special chair to sit it while in plane theytold me that Ican order a stetcher and he spends the whole journey in a stretcher! can u imagine.... NO WAY!! Now Im making all this fuss for future reference, I can't imagine a 20 year old young man havig to lie in a stretcherjust because the airline doe not cater for one special seat.

 

Denise Boian

Tue, 27 Jul 2010 04:21:25

The worst gift my autistic son recieved was from my mother on his first bithday when she commented the "he looks retarded..." I was devistated! Since then my son has become obsessed with disney animated movies and like most obsessions has devoted most of his purchases and gift lists to this theme. He has his favorite movie of the month/year which it makes it easier for us to shop, but his interests are different from other children his age so informing family what he "prefers" can be tricky and sometime not in his best interest (simply to avoid comments.) I wish he would enjoy what other fifteen years olds would (and in some aspects he does) but if he prefers to choose Disney action figues than the most current cd, I'm just thrilled HE made a choice...

 

Denise Boian

Tue, 27 Jul 2010 10:26:49

My 15 year old son now currently has a love/hate relationship with holidays and birthdays. He loves the food involved but his autism prevents him from participating fully with the family and friends interaction. For Christmas we have to hide all the gifts still until after he falls asleep on Christmas Eve or he will open them. If he got up first the next morning he would open all the gifts or tantrum to open everyone’s gift; things got a little easier when he learned to read names. Birthday were tough because although he understood the concept of singing (which he couldn't because he is non-verbal) and blowing out the candles, he would get so excited waiting for the song to finish to be first to blow he would primarily spit all over the cake. Thank goodness he didn't understand the reason why no one wanted a piece after that, but it gave us something to work on towards the next birthday celebration...

 



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    Holidays/Birthdays

    Write something about how you deal with holidays or birthdays.  Does your child always get stuff animals or clothing?  Do you enjoy each birthday or do you dread each year?  How do you celebrate and include your child?

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